Daily Archives: March 31, 2017

La Fondation Jeffrey Modell va déployer le premier réseau nord-africain pour le traitement de l’immunodéficience primaire

CSL Behring sponsorise le premier réseau de ce genre sur le continent africain

LIVINGSTONE, Zambie, 31 mars 2017 /PRNewswire/ — Le leader mondial des produits biothérapeutiques CSL Behring a confirmé aujourd’hui son intention de sponsoriser le réseau nord-africain Jeffrey Modell, qui établira un centre de diagnostic et de recherche en Afrique du Nord. CSL Behring devient donc la première société à prendre en charge les patients atteints d’immunodéficience primaire (IP) en Afrique.

Comme les autres 253 sites qui font partie du réseau des centres Jeffrey Modell, le centre d’Afrique du Nord offrira une évaluation diagnostique de pointe aux patients chez qui on suspecte une immunodéficience primaire. Cette condition recouvre plus de 200 désordres dus à un déficit du système immunitaire véhiculé par les gènes et caractérisé par des infections qui peuvent être persistantes récurrentes, débilitantes, chroniques et mortelles.

Vicki Modell, cofondatrice de la Fondation Jeffrey Modell a déclaré : « Fred et moi rêvons depuis longtemps de créer un réseau Jeffrey Modell en Afrique du Nord. La Fondation Jeffrey Modell est honorée et enthousiaste de collaborer, immédiatement et à long terme, avec CSL Behring pour mettre en œuvre notre vision et mission communes, et lancer des initiatives visant à sauver des enfants africains ».

L’ouverture du centre a été annoncée lors du 5ème congrès biannuel de la Société africaine des déficits immunitaires (ASID) dont CSL Behring est le sponsor principal.  « Ici en Afrique, on estime que le taux de diagnostic d’IP, une condition qui menace le pronostic vital, est seulement d’environ 0,3 %. C’est pourquoi nous restons fidèles à notre promesse d’améliorer les soins thérapeutiques, en particulier dans les zones de grand besoin. Nous voulons aussi, en partenariat avec JMF L’ASID, améliorer la prise de conscience, le diagnostic et le traitement de l’IP dans tous les pays du monde », a ajouté Markus Staempfli, vice-président et directeur général des opérations commerciales intercontinentales, chez CSL Behring.

Le centre nouvellement créé sera géré par des experts de 4 pays :

  • Le professeur Rachida Boukari, CHU Mustapaha Bacha, Faculté de médecine, Alger, Algérie
  • Le Dr. Aisha El- Marsafy et le Dr Jeannette Boutros, Faculté de médecine Université du Caire, Le Caire, Égypte
  • Le Dr. Aziz Bousfiha, Université du Roi Hassan II, Casablanca, Maroc
  • Le Dr. Ridha Barbouche, Institut Pasteur de Tunis, Tunis, Tunisie

À propos de la Fondation Jeffrey Modell

Vicki et Fred Modell ont créé la Fondation Jeffrey Modell (JMF) en 1987, en mémoire de leur fils Jeffrey, qui est mort à quinze ans, des complications de l’immunodéficience primaire, une maladie génétique chronique, grave, et souvent fatale.

JMF est une organisation à but non lucratif mondiale dédiée au diagnostic précoce, et aux traitements sérieux. Elle promeut les guérisons par la recherche, la formation des médecins, la sensibilisation du public, le plaidoyer, le soutien des patients et le dépistage néonatal. Le réseau des Jeffrey Modell Centers (JMCN) relie plus de 600 médecins experts de 250 institutions universitaires dans 206 villes et 84 pays. Il couvre les 6 continents et continue de s’étendre.

À propos de CSL Behring

CSL Behring est un leader mondial des produits biothérapeutiques dont la mission est de sauver des vies. Dans le but de prendre en charge les patients par le biais des technologies les plus récentes, nous développons et offrons des thérapies innovantes visant à traiter les conditions suivantes : troubles liés à la coagulation, déficiences immunitaires primaires, angio-œdèmes héréditaire, maladies respiratoires héréditaires, et désordres neurologiques. Les produits de la Société sont également utilisés en chirurgie cardiaque, ainsi que pour transplanter des organes, traiter des brûlures et prévenir la maladie hémolytique du nouveau-né. CSL Behring gère l’un des plus grands réseaux de collecte de plasma au monde, CSL Plasma. La société mère, CSL Limited (ASX : CSL), dont le siège est à Melbourne, en Australie, emploie plus de 17 000 personnes, et offre des thérapies qui changent et sauvent des vies dans plus de 60 pays. Pour plus d’informations, consultez le site www.cslbehring.com et suivez-nous sur www.Twitter.com/CSLBehring.

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Jeffrey Modell Foundation to Open the First North African Network for Primary Immunodeficiencies

CSL Behring Sponsors the First Network of its Kind on the African Continent

LIVINGSTONE, Zambia, March 31, 2017 /PRNewswire/ — Global biotherapeutics leader CSL Behring today announced its commitment to sponsor the Jeffrey Modell North African Network, which will establish a diagnostic and research center in Northern Africa, making it the first enterprise dedicated to helping primary immunodeficiency (PI) patients in Africa.

Like the other 253 sites that comprise the Jeffrey Modell Centers Network, the North African Network will offer advanced diagnostic evaluation to patients with a suspected primary immunodeficiency, a group of over 350 disorders arising from defects in the immune system carried by the genes and characterized by recurring infections that can be persistent, debilitating, chronic and life-threatening.

Vicki Modell, Co-Founder, Jeffrey Modell Foundation shared, “Fred and I have dreamed about creating a Jeffrey Modell North African Network for a very long time. The Jeffrey Modell Foundation is honored and enthusiastic to work with CSL Behring now and well into the future to partner in our mutual vision, mission and life-saving initiatives for children in Africa.”

The opening of the Network was announced at the 5thAfrican Society for Immunodeficiencies (ASID) biannual congress where CSL Behring is the main sponsor.  “Here in Africa, it’s estimated that the diagnosis rate of PI, a life-threatening condition, is only about 0.3%.  This is why we remain committed to our promise of improving patient care, particularly in areas of great need, and to partnering with JMF and ASID to increase the awareness, diagnosis and treatment of PI in countries throughout the world,” adds, Markus Staempfli, Vice President & General Manager, Intercontinental Commercial Operations, CSL Behring.

The newly founded center will be managed by leading experts in 4 countries:

  • Dr. Rachida Boukari, Mustapha Pacha Children’s Hospital, Faculty of Medicine, Algiers, Algeria
  • Dr. Aisha El- Marsafy and Dr. Jeannette Boutros, Faculty of Medicine Cairo University, Cairo, Egypt
  • Dr. Aziz Bousfiha, King Hassan II University, Casablanca, Morocco
  • Dr. Ridha Barbouche, Institut Pasteur de Tunis, Tunis, Tunisia

About the Jeffrey Modell Foundation
Vicki and Fred Modell established the Jeffrey Modell Foundation (JMF) in 1987, in memory of their son Jeffrey, who died at the age of fifteen from complications of Primary Immunodeficiency — a genetic condition that is chronic, serious, and often fatal.
JMF is a global nonprofit organization dedicated to early diagnosis, meaningful treatments and, ultimately, cures through research, physician education, public awareness, advocacy, patient support, and newborn screening. The Jeffrey Modell Centers Network (JMCN) includes over 600 expert physicians at 250 academic institutions, in 206 cities, 84 countries, spanning 6 continents and growing.

About CSL Behring
CSL Behring is a global biotherapeutics leader which is driven by its promise to save lives. Focused on serving patients’ needs by using the latest technologies, we develop and deliver innovative therapies that are used to treat coagulation disorders, primary immune deficiencies, hereditary angioedema, inherited respiratory disease, and neurological disorders. The company’s products are also used in cardiac surgery, organ transplantation, burn treatment and to prevent hemolytic disease of the newborn. CSL Behring operates one of the world’s largest plasma collection networks, CSL Plasma. The parent company, CSL Limited (ASX: CSL), headquartered in Melbourne, Australia, employs more than 17,000 people, providing its life-saving, life-changing therapies to people in more than 60 countries. For more information visit www.cslbehring.com and follow us on www.Twitter.com/CSLBehring.

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SOUTH AFRICA WILL NEED 650 BLN RAND TO BUILD THREE NUCLEAR POWER STATIONS

PRETORIA, Participants of the Nuclear Africa Conference held here this week have been told that South Africa will need around 650 billion Rand (about 50 billion US dollars) to build three nuclear power stations.

The Chairperson of the South African Nuclear Energy Corporation, Kelvin Kemm, said financial discussions were being held with companies bidding to build the nuclear power stations. He questioned reports that more than 1.0 trillion Rand would be needed to build the power stations.

“We know what we are getting into. We know what the approximate prices are and we know them in pretty fine details,” he said.

“We are not going to go and expose them to the public in too much detail, because these are part of the financial discussions that are taking place with foreign-owned companies that come and bid.

“To say that we have no idea is wrong. And the other thing that the public is misinformed about is that they think that this money is going to be spent going on year one and year two and that is wrong.”

He added that calculations which had been done by scientists showed that the overall cost would be in the region of 650 billion Rand.

Source: NAM NEWS NETWORK

Alternate Foreign Minister G. Katrougalos meets with Belgian Ambassador L. Liebaut

Alternate Foreign Minister Giorgos Katrougalos met on 29 March with the Belgian Ambassador to Athens, Luc Liebaut.

During the meeting, there was a discussion about European issues of mutual interest. In parallel, the excellent level of economic and bilateral relations between the two countries and interest in further deepening these relations were reaffirmed.

Source: Ministry of Foreign Affairs of the Hellenic Republic

Acting Premier Sihle Zikalala attends Amagugu Esizwe Gala Dinner in Ladysmith

KwaZulu-Natal Acting Premier Sihle Zikalala and MEC for Arts, Culture, Sports and Recreation Bongi Sithole-Moloi will today attend Amagugu Esizwe Gala Dinner at Alfred Duma Indoor Sports Centre, in Ladysmith. The dinner is in honour of the founder of Ladysmith Black Mambazo, Dr Joseph Shabalala.

Zikalala remarked: This evening we will pay homage to one of the country’s cultural giants, Dr Joseph Shabalala who embodies all what Isicathamiya as one of the nation’s music genres is all about. This is a music type which is proudly South African that had seen Dr Shabalala and his group catapulting it into the greatest heights of the cappella music performances.

It is a common course that heroes and heroines do receive recognition when they had departed this world. We are grateful that this is not the case with Dr Shabalala and Ladysmith Black Mambazo who have become the country’s prominent cultural exports the country and the continent had ever produced.

It should be noted that Dr Shabalala, the Ladysmith Black Mambazo and other musicians composed and performed during the apartheid era. They gave us hope during the most difficult period in our history when the majority of our people were oppressed by the most brutal system.

Over the past 57 years, Ladysmith Black Mambazo has won four Grammy Awards and nominated 15 times. Critically, as the inheritors of a great legacy, our task now is to ensure that this legacy is protected, nurtured and passed on to generations to come.

Source: Government of South Africa